Stress Level Among Caregivers of Thalassemia Patients
Keywords:
Thalassemic children, Caregivers, Psychosocial burdenAbstract
Introduction: Children with Thalassemia have to regularly attend hospital for blood transfusion and chelation therapy. Parents suffer from psychosocial burden because of expenses, stress and fear of death.
Material and Methods: It is a cross sectional interview based study. Thirty five Care giving parents were interviewed in the day care cen- tre of anemia in Choithram Hospital Indore. Two proformas were used. One for general information and the other one was the Zarit Burden Interview scale.
Results: The parents were under stress (60.6%).There was no differ- ence statistically between school and college educated caregivers of psychosocial burden. Knowledge regarding prevention of Thalasse- mia by pre marriage genetic counseling and testing was very poor among parents.
Conclusion: The parents of Thalassemic children need to receive health education about the disease and required treatment. They need psychosocial counseling and support.
References
G. K. Pruthi and T.B. Sing, Psychosocial Burden and Quality of life in parents of children with Thalassemia and cerebral palsy: A comparative study. Delhi psychol- ogist- Journal of psychological Research 2010; 2(1);46-157
Kliegman, Behrman, Jenson and Stanton. Nelson Text book of Pediatrics. New Delhi: Elsevier, a division of Reed Elsevier India Pvt. Ltd; p 2033
K. Park, Park’s Text book of Preventive and Social Medi- cine.Jabalpur: Bhanot publications; 2007;678
Despina sapountzi-krepi, Zoe roupa et all, A qualitative study on the Experiences of mothers caring for their children. Journal of pediatric Nursing: Nursing care of children and families; 21(2); 132-142
A. S. Schreiner, T. Morimoto, Y. Arai and S. Zarit, Assess- ing family caregiver’s mental health using a statistically derived cut-off score for the Zarit Burden Interview. Ag- ing and Mental Health.2006; 10(2); 107-111
Assi Obaid Kareem, Psychological problems associated with Thalassemia in Diyala province, Iraq. The Swedish Journal of scientific Research; 2014; 1(3); 6-10
K. Aziz, B. Sadaf, S. Kanwal, Psychosocial problems of Pakistani parents of Thalassemic children: a cross sec- tional study done in Bahawalpur, Pakistan. Biopsychosoc Med. 1012 6(1): 15
T. Siantis J, T. Dragonas, C. Richardson, D. Anastasopou- los, G. Masera and J. Spinetta. Psychsocial problems and adjustment of children with beta Thalassemia and their families. Eur Child Adolesc Psychiatry 1996; 5(4): 193-203
D. Shaligram, S.C. Girimaji and S.K. Chaturvedi. Quality of life issues in caregivers of youngsters with Thalasse- mia. Indian Journal of Pediatrics. 2007; 74; 274-278
Shazia Ali, Fazaila Sabih, Sarwat Jenah, Msood Anwar and Sabira Javed. Psychological distress and coping strat- egies among parents of beta Thalassemia major patients. International Conference on clean and Green Energy IPCBEE, 27, Singapore, IACSIT Press, 2012; 124-128
Luigi Mazzone, Laura Battaglia, Francesca Andrezzi, Maria Antonietta Romeo and Domenico Mazzone. Emo- tional impact in beta Thalassemia major children follow- ing cognitive-behavioural family therapy and quality of life of caregiving mothers. Clinical practice and Epidemi- ology in Mental Health. 2009; 5:5
Afshan Sharghi, Mojgan Karbakhsh, Behrooz Nabaei, Alipasha Meysamie and AliReza Farrokhi. Depression in mothers of children with thalassemia or blood malignan- cies: a study from Iran. Clinical practice and Epidemiolo- gy in Mental Health. 2006; 2:27
Bernadette Mazurek Melnyk, Nancy Fischbeck Feinstein, Zendi Moldenhouer and Leigh Small. Coping in parents of children who are chronically ill: Strategies for assess- ment and intervention. Pediatric Nursing. 2001; 27(6); 548
Chandrashekar Hongally, Asha D. Benakappa, and Shankar Reena. Study of behavioral problems in multi- transfused thalassemic children. Indian J. Psychiatry. 2012; 54(4); 333-336
Suksiri Prasomsuk, Arunee Jetsrisuparp, Thawalwong Ratanasiri and Amonrat Ratanasiri. Lived Experiences of mothers caring for children with Thalassemia major in Thailand. J. Spec. Pediatr. Nurs. 2007; 12(1) 13-23
Ya-Ling Lee, Dong-Tsamn Lin and Shu-Feng Tsai. Dis- ease knowledge and treatment adherence among patients with thalassemia major and their mothers in Taiwan. Journal of clinical Nursing. 2009; 18(4); 529-538
Awareness among parents of children with thalassemia major. Available at. Jpma.org.pk/full_article_ text.php?article_id=1544. Accessed on. 12.03. 2015
Manoj Jain, Abhay S. Bagul, Ashok Porwal. Psychosocial problems in thalassemic adolescents and young adults. Chronicles of Young scientists. 2013; 4(1); 21-23
Downloads
Published
How to Cite
Issue
Section
License
This work is licensed under a Creative Commons Attribution-ShareAlike 4.0 International License.
The authors retain the copyright of their article, with first publication rights granted to Medsci Publications.
